There comes a point where parents have to make decisions for their child’s welfare in the event the parents pass away leaving behind the surviving child.  They determine who will get their child, how the child will be cared for, what financial means will be there to support them, who will manage the finances, and who will protect the child’s best interest.

When a child has a disability, Wills, Trusts and Estates become more complicated. The decisions you make in your Will, how you set up a Trust, or how your Estate is managed can have long term effects on your child’s disability pension.  Just doing a home will kit most likely won’t be enough.

There are two sources I found useful to contact in BC, Canada that offer online courses in setting up and understanding Wills, Trusts, and Estates.  Plan (Planned Lifetime Advocacy Network)  and ACT (Autism Community Training). Plan has both in-person and online courses to guide you through the steps of preparing a will and estate planning. ACT has an online video Estate Planning for Families Who Have Children with Special Needs in BC. Both Plan and ACT also discuss the Registered Savings Disability Plan.  (Low vision users please click on the full organization names listed above for links)

Whatever decisions are made, even if they are not ideal; it’s better to have something documented than to have someone else make those decisions for you. 


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(Wheel-ist-ic) Adj: awareness or acceptance of actual fact, real existence, or truth with relation to inclusion, accessibility and/or persons with disabilities.

Let’s Be Wheelisitic is a blog designed to open communication, share and create change through parenting, awareness, inclusion and advocacy. Over the years people have encouraged me to use my voice and experiences with my daughter to help others with or without disabilities, or parents of children with disabilities. This blog is my way of doing just that. I hope you will find this site enjoyable, educational, helpful, and rewarding.
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“We must be willing to let go of the life we have planned, so as to have the life that is waiting for us.” — E. M. Forster