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A friend, who is of Christian faith, shared this YouTube video with me a little while ago.  I’ve shared it with a few people since and it’s brought some mixed reactions.

This dog is so persistent that you can’t help but be touched. I couldn’t help feel for the little boy who has Down Syndrome. I’m not sure he was always that impressed by the heavy dog paws. 

A dog can be a child’s best friend and this dog is determined to be just that.

Enjoy.

 

A friend of mine has an adorable son who right now is trying to understand why cars are moving so quickly, why the buildings are so tall, the lights… there is so many lights, the sounds…..Mommy make them stop. As I type this post, he is experiencing sensory overload and his Mom is doing her best to calm him, all the while knowing she is exhausted. Her heart pumps like thunder with the occasional strike as she tries to slay the many dragons that are coming at him and convince him everything is okay. At the end of the day as his tired eyes finally close, the noise is quiet, the sights and smells go away; she takes a moment to breathe.

 

Her son, Mr. C as she likes to call him, has a variety of chromosome disorders: Chromosome 15q Duplication Syndrome (Dup15q), 17q and 3q23. Seizures, cognitive delays, behavioral problems, fine motor delays, anxiety, sensory processing, speech, language and even sudden death are some of the many characteristics of children like Mr. C.   He is the only documented child in the world known to have 3q23 Chromosome Syndrome. As I type that, I can’t imagine how terrifying that must be for his mother and father. Mr. C is too young to understand. Read the rest of this entry »

It won’t be long until children are giggling up and down our streets in colourful costumes. Pumpkins will line our pathways and glow sticks will be hoping about in the darkness. Personally, I think Halloween is right up there on the list of ridiculously fun times. Nothing motivates a child more than candy of course, but creating spooky crafts, reading ghostly stories, watching scary movies, visiting the local haunted house and dressing up in their costumes; that’s what makes it fun.

For adults, most of us enjoy watching the little bodies with painted faces and fangs come to our door. The pretty princesses and swashbuckling pirates yelling “Trick or Treat” make it entertaining. 

I love decorating my house and garden at Halloween more than Christmas. I enjoy making crazy costumes and seeing how many other adults decided to step out of the norm and into the land of make believe. Observing what wacky ideas for costumes people come up with is half the fun. Costume ideas for a person using a wheelchair could be the biggest trick or treat.

A friend sent me a link that brought a smile to my face. There are some seriously creative people out there. Check out these homemade costume designs. If you have others I’d love to see them too. Drop me a comment or email me a picture. 

For the coolest homemade costumes, click here.

Enjoy.

On February 14th, 2012, Ekso Bionics delivered it’s first commercial Exoskeleton to Craig Hospital in Denver.  Technology has come a long way when a person with a spinal cord injury can essentially strap on robotic legs that enable them to stand and yes, to walk. 

 

 

 

Imagine the possiblities this could bring to the life of someone with a spinal cord injury.  I couldn’t stop reading when a friend sent me the link to Ekso Bionic’s announcment on Marketwire. Judging by their test results, I think it’s incredibly exciting news for the rehabilitation of paraplegic, quadriplegic and other spinal cord injury related patients.

 

 

 

How cool is that!

 

If you watched the Ellen show yesterday, you probably saw something extraordinary. After seeing an amazing video, Ellen brought Josh Dueck of Vernon, B.C., Canada,  to her show.  He stunned the world when he envisioned and succeeded in doing what had never been done before. 

In 2004, Josh became paralized from the waist down after over shooting a flip on skiis and landing on the flats. Clearly he didn’t let that stop him. Josh Dueck went on to become a  master Mono-skier.  He won gold in Mono Skier Cross at the 2011 X – Games. That success continued with another gold in downhill at the 2009 World Championships followed by silver at the 2010 Paralympic Winter Games. These were incredible achievements for Josh but he was still craving something more.

On February 3rd, 2012, athelete Josh Dueck became the first Paraplegic Skier to perform a backflip on a sit ski built specifically for him. This was just another part of Josh’s true journey of freedom. Check it out. 

If you would like to see Josh Dueck’s interview on “Ellen” yesterday, click here.

 

 

The funny things children say pop out of nowhere sometimes.  As a parent, you think about all the things you express aloud in front of your children. You catch yourself or others saying things you don’t want repeated.

 

- When your child blurts out the “F” word and their only in kindergarten, you know you have issues.

 

- When your child suddenly says “Mom take a chill pill”, who taught them that one?

  Read the rest of this entry »

Just a quick note.  A blog post today caught my attention deeper than most.  I’d like to pass along.  If you have a moment check this out. 

http://jenniferchandler.com/reflections/hope-in-a-changing-world

As the world heard recently, Steve Jobs the Co-founder and CEO of Apple Inc., passed away of pancreatic cancer.  He was an innovator, an entrepreneur and a genius.  Few could argue about his contributions to the technological world of computers.  I wonder if he ever truly imagined the impact Apple would have on so many.  Did he know what kind of doors it opened for people with disabilities? IPads are now being used to facilitate learning and communication for adults and children with Autism and other disabilities.   The world of touch screens, text messaging, apps and video has opened doors for people with physical or developmental disabilities, hearing impaired, vision impaired, non-verbal, etc.  People without vocal ability can now walk into a Tim Horton’s and order a Double Double or Tim Bits using Apps like MyVoice.  Children with low-vision can now learn how to spell and read with magnified, high contrast, customizable programs.  All of this was made possible simply because Steve Jobs and his team created a product that would support and inspire other creative minds.

Read the rest of this entry »

So here it is my very first post.

This is the moment that seems like it has taken an eternity to happen. You have a vision of what you want, but sometimes what you want isn’t always possible. I visualized an accessibility project that would potentially change the world, or so I believed. The more I thought of this project, the bigger it got and the reality set in that I couldn’t possibly do this on my own. It was enormous and I am mother to a beautiful girl that requires a great deal of me (see my about me page). It was then that my sister said, “Begin with a blog, get your voice out there and see what happens”. Although that made perfect sense to me, I still continually went back to my project and thoughts on how I could get it off the ground.

Well, a year or more went by and I finally decided my sister was right. Now, as the ideas for this blog continue to burst from my brain, I’m excited. I make no promises that I will write every day but I will do my best. This is not a blog to dump out all my blues or horror stories that I have faced. Equally it is not a blog for visitors to do that either.

My topics will vary and I hope that people of all walks of life will enjoy this and not look at this a strictly a disability blog site. I maintain the freedom to post whatever is on my mind, disability related or otherwise. On that note let me also say I hate the word disabilities, it seems so negative to me as though it focuses on what someone can’t do. We all have different abilities and I’m only using the word because that seems to be the one most used for lack of a better one.

My dream for this blog is that the fears of the unknown when it comes to disabilities will diminish. A mother or father will learn how their child can play with mine and that my child is a playful little soul just like theirs. I want to bring awareness to what the needs of persons with disabilities are and advocate for them. I want this blog to change stereotypes that come with disabilities, and to provide resources and tips.

Let’s be wheelistic, this could be a tall order for a blog. I intend to give it my best shot. Enjoy.

(Wheel-ist-ic) Adj: awareness or acceptance of actual fact, real existence, or truth with relation to inclusion, accessibility and/or persons with disabilities.

Let’s Be Wheelisitic is a blog designed to open communication, share and create change through parenting, awareness, inclusion and advocacy. Over the years people have encouraged me to use my voice and experiences with my daughter to help others with or without disabilities, or parents of children with disabilities. This blog is my way of doing just that. I hope you will find this site enjoyable, educational, helpful, and rewarding.
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Quotes

“Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky.” — Rabindranath Tagore

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