My daughter’s journey to independence has been a long and often difficult process. This year we stepped it up a notch with the pursuit of a camp that would also provide therapy for Callie. We decided to try Ability Camp (see previous post). Let me fast forward to the day of the trip….Wholly crap were we up early in the morning! It was 3:30am. We got up, washed, ate and loaded the van barely able to focus. Even with the ridiculously well laid out plan and help from family members, we were still running late. 

 

At the airport, we stood in line to get our boarding passes through the kiosk. That was a mistake. Word to the wise, if you previously requested assistance from the airline staff for boarding, a kiosk may not work. We had to wait in line a second line for customer service. We went through security fine, with the exception of juggling a child, wheelchair and four carryon bags. We quickly zipped to the bathroom and zipped out, only to hear our names called for boarding. Yikes, zoomed through the airport to the desk.  

 

There was a weird, emotional moment for me when I reached the lady who would check our boarding passes. I choked back tears and tried not to look like a panicked flyer. The truth is it had nothing to do with flying. It was the moment I realized my child was about to get much needed therapeutic help. Oddly, it felt like her journey to independence was just beginning.

 

The flight was good up until Callie’s wheelchair was missing at the other end. Now the panic was setting in. After what seemed like an eternity and several people trying to locate it; it finally arrived, but not in one piece. The chair was damaged. I spent my first week at camp making many phone calls trying to get someone to repair the chair. The airline and all those involved were polite and understanding. They put a plan in action to have someone repair it within the week. Luckily, Callie seemed unphased. She focused on her daily therapy, her IPad addiction and other play activities. I’m so fortunate to have such a good natured little girl.

 

It’s tough whenever we’re away from home and family. Both of us have a bit of trouble adjusting. The accommodations at Ability Camp are adequate, but there were a few annoying moments of things not working correctly. The fact is it’s a camp not a hotel. 

 

In the first few days of therapy, I watched Callie do things I’ve never seen her do before. With ongoing support, I’m excited to see what her future holds. The other families enrolled provide encouragement to all the children and each other. I only wish I knew about this sooner. This is a perfect example of why I write my blog. Maybe some other parent will read my scribble and find out about helpful things for their child just a little bit sooner.

2 Responses to “Ability Camp -The Journey to Independence”

  • Vanessa Ragoonanan:

    Love this , we wish we had found out about it sooner too….better late than never..we can’t say we did not try.

    • admin:

      Thanks for the reply Vanessa. Conductive Education is particularly good for children with motor impairments. Trying, supporting, and loving our children is all we can do. It was a pleasure meeting you and your family, sharing the highs and lows of camp together. Maybe we’ll see you next year. Till then, keep in touch.

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(Wheel-ist-ic) Adj: awareness or acceptance of actual fact, real existence, or truth with relation to inclusion, accessibility and/or persons with disabilities.

Let’s Be Wheelisitic is a blog designed to open communication, share and create change through parenting, awareness, inclusion and advocacy. Over the years people have encouraged me to use my voice and experiences with my daughter to help others with or without disabilities, or parents of children with disabilities. This blog is my way of doing just that. I hope you will find this site enjoyable, educational, helpful, and rewarding.
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“We must be willing to let go of the life we have planned, so as to have the life that is waiting for us.” — E. M. Forster

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